Sunday, August 28, 2016

Where I Am Today...

The last month has been unforgiving for me...a surgery that I can't even remember...nine days in recovery at the hospital that has my knees weak and clinging to the railings as I walk up or down the stairs at home because one or the other takes my breath away...sitting in a comfy chair at home trying to eat what I am supposed to when even looking at food makes me ill. My tummy feels so small that a few bites of something makes me so full I want to scream. I have gone from thinking I had IBS to learning that I had a massive cyst...most is gone but I have to have chemotherapy to make sure it's all gone...wearing knit hats for the next 6 months will be my life. Being home bound fo the next six to eight months is my life. I have never been to so many doctor's appointments and the sutures on my chest are lifesaving yet ghastly. My body was debunked by amazing surgeons. Before surgery I watched Murder, She Wrote...now I can't stop watching the Food Channel. I have gone from reading dozens of books a week to barely one book a week. I try to check blogs when I can but there are days when it's just overwhelming. I have visiting nurses and Tina who washes my hair and helps me stay clean...these are the basic facts of my life now. I was always so modest but sitting in the shower while Tina or Den wash my hair...o m g...I cry and thank God daily.

I have a small surgical wound that won't heal so today a nurse came to install a wound vac...so now I walk around with a small buzzing purse. In the hospital I was forever hooked up to bags and tubes and lifesaving meds. Now it's a vacuum...sigh...

This is one of those nights when no matter what...I can't sleep...I can't fit my head into the silence. Den needs rest...it's just him doing everything. He tracks meds and appointments. When I was still in the hospital he was with me constantly. My heart breaks when I see how much he is doing and I pray for him constantly. He has lists and charts and records and nothing gets by him. I don't know what I would do with out him.

Nothing in our house is as it used to be...but our house is clean and shiny and managed by Den. He shops, does our laundry, tries to maintain our outside flowers...tries to keep our way of life until I can help him again...

We need to buy a new leather lounge chair and sofa...we are sitting in the family room and our other furniture is horrible for long term sitting...we should have done this months ago but of course we didn't...so Den will take photos at Bassett this week and hopefully we will work this out...it's just one of those little things that you realize is important when you are housebound...I think a bigger TV, too...I know it sounds silly but we need to get this done.

So...I read some blogs but staying on top of things is beyond me. I miss my old life but I can't keep up. It's all I can do to clear email on some days.

I thank those people who sent food and cards and blankets and flowers...just reading the cards has been delightful...when I can I will do more with them. It's all that I can do now to stay strong and positive and walk and eat and not cry too often...

 

Hugs...

Patty

Waiting For Patty...

 

23 comments:

  1. You've been on my mind so often, Patty. Sounds like Den is taking the best care of you. I'm sending positive thoughts and virtual hugs.

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  2. It's so good to see you on here even if the news isn't the best. I had no idea the surgery would be so extensive or that you'd need chemo. I think about you all the time and pray for you and Den daily. Keep fighting!!

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  3. So sorry you're having such a hard time. My thoughts and prayers are with you for a quick recovery. It sounds like you are very Blessed to have Den in your life.

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  4. I've been thinking about you darling. I"m sorry it's such a struggle for you right now and that you're worried about Den. Sending you a *hug*. Do you have enough knit hats? Are they soft enough? Let me know. I can knit for you.

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    1. Oh Stephanie...that is soooo sweet of you! That wold make me so happy! Thank you!

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  5. Patty, I will keep you and Den in my prayers! Stay strong and keep your faith in the Lord!

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  6. Oh, Patty, I'm so glad to hear from you but sorry that you're feeling so poorly. Stay strong and things will improve.

    Hugs to both you and Den!

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  7. Patty, you have been on my mind and my heart since I heard of your surgery. You are in my prayers daily, as are Dennis and the cats too! Let me know if there is anything we can do. sending prayers, positive vibes, good thoughts, good juju, and anyting else you might need to see you through these tough times.

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  8. Oh, I was so excited to see your little reply on Facebook, today, and now this. It is good to read this post, and even though your days are full of struggles, you are still you, fighting back. You will find your way back, I truly believe, and you will be stronger for it. What an awesome husband you have, and I am wishing you lots of comfortable things and sending you a hug, too.

    Thanks for sharing with us.

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  9. I've been thinking of you and keeping you and Den in my prayers. I keep writing things, but they don't sound right so instead I will just say Keep looking for the positive, do what you need to get healthy and know that we are thinking of you and sending love, hugs and healing thoughts. xoxo

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  10. Oh, Patty...I've been there...surgical wounds that don't heal...in the hospital for weeks...The Visiting Nurse...Loss of modesty..I know of what you speak. I sent you an email a few days ago. I don't know if you were able to read it, yet. I'm praying for you.

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    1. Thank you June...I don't think I saw it...can you resend?

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  11. I feared that the surgery was more serious and given your recent post, I now see that it was but thank goodness you questioned your health and got to the doc when you did.

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    1. You were right....I was stupidly naive!

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  12. I have been worried about you. Please know ou are in my thoughts and prayers. I wish I were there to help with the girls. Hugs.

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    1. Thank you...the girls are amazing...working with us...

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